Night night Mummy W

Last Monday Mum played table tennis.

On Tuesday she couldn’t remember, so I showed her the photo and she informed me that  ‘actually I was very good at it’.  (Coordination even pre stroke and dementia wasn’t one of Mum’s strengths, so that made me giggle).

Then she let me take this photo, and smiled nicely because I told her it was for her sister:

On my way home that evening I missed a call from the care home because I was driving.  My sister took it.  Mum had had a stroke.

There’s a lot of stuff that happened in the middle, but essentially Mum was barely alone from that point.  And by Thursday morning me and my sisters had moved into her room at the care home with her.  We took Dad to visit in the day and we slept in shifts on the floor at night.

I wrote this on my personal face book page so if you know me there you may have seen it.  I was going to write something different here, but for once, I am lacking in words so:

On Saturday morning the rain and the grey clouds of the last few days rolled away and left enough blue sky to make a pair of sailors trousers. Sure enough, just like Mum always said, those trousers meant that the sun came out and the day was a beautiful, crisp one.

It turned out it was also the perfect day for Mum’s body to stop fighting and finally let go.

We made sure that Mum was never alone in her last few days, for even a second.

We know that this was absolutely the right thing for Mum as most of her left us a while ago. That doesn’t make her dying any easier though, and she has left a unique gap that is entirely hers in each of our hearts.

Since our childhoods we have always sent each other to bed with ‘Night night, love you’

Mummy W:  Night Night.  Love you.

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My new face

At some point last year I was going out somewhere with Mr R and had one of those moments when I just could not remember…in this case, it was whether I’d put my make up on or not.

I don’t wear much make up at all, but Mum always told me I looked like a pig without mascara and eyebrows, so I always did them at a minimum.

I waved my face in Mr R’s direction and asked him to tell me if I was good to go or if I needed to go and find my (very small) makeup bag.  He looked at my face…looked a bit longer and…told me he couldn’t tell.

And I think it was that point that I just stopped bothering.  I pencilled in my eyebrows so I didn’t look permanently shocked and just got on with things.  Nobody seemed to notice.

And I stopped looking in the mirror so much because I didn’t need to, then I almost avoided looking in the mirror because I wasn’t keen on what I saw anyway.  It’s amazing how fast those ‘laughter lines’ start finding things really  hysterical and how rapidly your eyelids start to droop and your face…well, it all drops a bit really.  And don’t get me wrong – I don’t mind getting older – it’s an honour too many people I’ve known wont get – but it’s still sometimes a bit of a surprise how fast things happen.

But it started to feel a bit rubbish.  And even if I did try, I couldn’t make my reflection one I liked.  So for Christmas I asked for a make up lesson.  And now I have been 😁

And as you’d expect, it didn’t go smoothly.  The teacher was a beautiful French lady who assured me when I checked that she had experiences other ‘challenging’ clients.  But I imagine not any quite so cack handed and unable to follow instructions.  I went with ‘full’ make up on (this is going out to something fancy in my case) so she could see what I did and if any of it was good to keep.  We established that mostly it wasn’t – either because the make up was not good for ‘older’ skin or the look was good in the 90’s but less so now… She took it all off and started again.

She then did half of my face and I did the other half, a little bit at a time.  I learned to use fingers (‘Not that one!  Never that one!’) and exactly where to put the absolute minimum of things I’d never heard of (‘Did I say to put it there?’… ‘Um, yes?’….’No, no!  Here!’).

I learned about lines and blending (‘stroke, not pat!’) and tricks to make things seem less droopy and wrinkly and (hopefully) fresher. I also learned that even with the kindest, most patient of teachers, there is not a limit on how many times I can feel the need to apologise.

And now I’ve bought all the bits of make up she suggested online and while I may look like a clown for a while as I try to remember the right fingers, and get the quantities right and put the damn stuff at exactly the right point, maybe in a while I’ll look like a respectable lady who cares just enough to make an effort.  Until then, apologies to anyone I bump into in real life 🙂

Photos below – top is before and below is after.  I’m very much hoping you didn’t need telling that!

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A parental update

It’s been a while (6 months) since I did a video with Mum for all sorts of reasons, but if you were missing her, I did a quick update here including a quick tour of her room, which is really rather lovely.  I think the food is too, despite her comment (at least the lemon squash is up to scratch!)

Mum and I walked to her room from the lounge.  As I opened the door and she walked in, she very happily greeted someone with ‘oh hello again, I saw you yesterday and now you’re here again!’

It’s pretty slow progress behind Mum and I had enough time to wonder if perhaps one of my sisters was there, but as I followed behind I realised the room was empty.

‘Who were you talking to, Mum?’ I asked.

‘Them!’ she said pointing at….

…the radiator.

‘Lovely’ I said.  Because that’s just how it is sometimes.

And in other parental news, Dad has reached the heady heights (weights) of 9 stone 2.2!  The carnage created to achieve this has been worth it.  I think. 😬

And that’s about it.  Here is a lovely smiley photo of each of them 🙂

Posted in care home, Cooking, COPD, dementia, family, looking after Mum, memory, muddled life, muddled life guide, stroke, Tuesday, Tuesday TV | Tagged , , , | Leave a comment

Spreading wooly smiles

Around Christmas time I heard an appeal from the RSPCA on the radio for people to make blankets for cold furballs.  I can’t stand the thought of a cold furball, so I got crocheting and made this one:

We have an RSPCA branch near by and I had some bits for their charity shop so I took it down today.  It turns out that most RSPCA branches are actually independent and self funded, and in the case of the one here didn’t have a connection to the central campaign.

But they were SO happy to get a brand new blanket that a cat could have there and be re-homed with that it seemed just as important at the Pet Food Bank.  So  I left that one with them and maybe I’ll send the next one that I started last night in the post to the central campaign.

I just thought I’d pop this on here incase anyone else has bit of wool to use up and a bit of time to knit or hook one while watching TV or travelling on a train or being a passenger in a car or (If you knit or crochet, you know this list can go on and on).

It seems like such an easy way to help a fur ball that needs a bit of extra love and to spread a smile.  Everything (other than the wool and your time) you need is here here  🙂

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No aliens to see here

Once upon a time (around a decade ago), many miles away (Bumpkinsville), my brain used to do a weird thing on quite a regular basis.  At least, I think it’s weird; I guess other people’s brain might do the same in the same circumstances.

You see, in those days, I lived alone in Pog Towers and could work from home for a few days at a time, so often I wouldn’t see or speak to anyone for a few days.

And then, when I went to work I used to leave at around 5am (because, well, people) to drive to the station.  And because I lived in real Bumpkinsville, and because it was silly o’clock, I’d rarely see anyone else on the drive.  And my brain had two places it would often go to:

  1. There’s nobody around.  Is it actually a bank holiday and you forgot?
  2. There’s nobody around. Did the world end and you are actually the only person left?

Now I live in a busier area, with Mr R and I can’t remember the last time I had either of these thoughts.

Until today when my brain clearly decided to make up for lost time.

As Percy and I went up the road, across the nature reserve and over a field I realised it was really, really dark.  And we were late leaving, so it should have been lighter than usual.

Then we got to the woods and the ground looked wet, but one step in and as I did one of the cartoon leg wheel things it became clear the entire trail was black ice.

And then I realised, despite being late, and presumably because it was pitch black, there were no birds singing.  It was silent.  And dark.  And really rather spooky.

Now for this next bit you need to know that I wear glasses.  And without them things are…well…very soft focus and rather blurry.  And I don’t plod with glasses on as they steam up.

So it’s pitch black, spooky and so icy that I’m picking my way along the side of the path so my trainers can grip something and I realise I cant see Percy’s light, so I call and call and in the distance I can see a red triangle of light with two small orange lights above it slowly coming towards me and my brain decided to make up for all that time it’s behaved and informs me:

‘There has been an alien invasion.  That is why it is pitch black and why no birds are singing.  That thing coming towards you is either an alien coming to get you or a UFO full of them’.

And I actually froze.  Nearly half a century I’ve been around for now, and I still panicked, just incase my brain had it right and a Thursday morning alien interaction was on the cards. (To be fair to me, we did acquire a ghost in the house where we stayed in Cornwall over new year, so my rational self is having a bit of a crisis of confidence at the moment).

It didn’t.  No aliens.  No UFO.  It was Percy, his collar light blurry in my soft focus sight with his two eyes reflecting my head torch above.  Obviously it was.  But if I’m honest, I still wasn’t 100% sure until the delayed dawn started and the birds let me know they were waking up with their dawn chorus.

Lordy, we’re only a week in.  I’m not sure I can cope with this level of excitement throughout 2026.  It looks like it might be an interesting one 🙂

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Retaining information

Someone in Mum’s dementia unit can read and retain information.  Dont get me wrong, this is great.  For them.  Less so for people like me.

Because, to keep people safe in a home such as Mum’s there are key pads on the doors and to use the lifts.  The codes (apart from the main door) are written in these little pictures hung by the key pads:

Only the picture next to the lift on the dementia unit has been removed.  Which is not ideal as I just cannot remember sequences of numbers for more than around 20 seconds (other than the phone number of my childhood home and the zip code of my friends address when she moved to America age 11.  Neither are useful as Mum and Dad changed numbers when they moved around 15 years ago, and my friend only went to the US for two years.  Why on earth would my brain doesn’t remove these numbers from my memory to make way for others, I don’t know).

Apparently I can’t even remember the number long enough to remember to write it down.  So each week I have to go and find a purple tunic person to give me the code and hope nobody interrupts my walk back to the lift as I repeat the sequence over and over…

So I’m not great with remembering numbers, but it turns out that I’m not good at remembering anything at the moment.  I only remembered to sign some of the Christmas cards I sent this year.  The reason I know this is that some people have recognised that anything with a crochet element can often be traced back to me and checked.  Others may be having a Valentine element to their Christmas courtesy of yours truly.

Then yesterday a solicitor (oh the joys of equity release!) contacted me as I’d only sent her half a document.  It was the important half, but apparently these legal people are picky and they wanted the rest.  I was told I’d I sent the first half in October.  I had absolutely no recollection until she sent me a photo.  And then I had no idea where it might be.  I went through all my Mum and Dad folders. Nothing.  I assumed it must be at Dad’s so I called and asked him to look through his folders.  Nothing.  I spent 2.5 hours yesterday afternoon separating every piece of paper in my Mum and Dad folders, my work folders, all of mine and Mr R’s paperwork and his and my desk drawers.  I even moved my desk and checked behind the radiator. Nothing.  Just as I was about to serve dinner I remembered another Mum and Dad folder I have (there is alot).  It’s the original one.  It was the first document in there.  Of course it was.

So while numbers are a known problem, I suspect that my head is currently just too full for any more information.  I shall concentrate on emptying it over Christmas, until only fairy lights remain 🙂

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Cracking on with Tuesdays

This Tuesday I joined Mum for breakfast as there seemed rather a lot to get done and I’ve discovered it is possible to fit more into the day if you simply get up earlier and crack on.

However, the level of ‘cracking on’ that can happen in a room of people with dementia is a little on the low side, and this was highlighted by a loop of conversation around Mum’s marmalade on toast that went a little like this:

Me: ‘Mum, are you going to eat your toast?’

Mum: ‘I’m waiting for him’ (nodding at the man sitting next to her for no particular reason I could identify)

Me ‘I think he’s done, if you want to start’.

Mum: ‘I can’t’

Purple tunic carer (Mum loves everyone in a purple tunic.  I’m thinking of getting one): ‘Would you like to eat your toast?’

Mum: ‘I am’ (clearly not)

Purple tunic carer: ‘Here, pick it up like this’ (helping mum grasp the toast)

Mum: ‘Oh’

*Purple tunic carer walked away, mum put down the toast*

Me: ‘Mum, are you going to eat your toast?’

Mum: ‘I don’t have things to eat it with.’

Me: ‘You pick it up with your hands like the lady just showed you’

Mum: (looking incredulous) ‘Don’t be so silly; of course you don’t!’

The three of us did the loop for a while before Mum decided she was giving up on the toast and going to her room.  I grabbed her walker and tried to manoeuvre her to hold the handles.  Obviously I’d created a level of mistrust by suggesting using hands to eat toast with and Mum was not keen on following my suggestion.  And then I felt my scarf tightening around my neck… the lady who was sitting with her back to Mum had reached around and taken a shine to it, and presumably wanted a closer look.  I stepped slightly towards her to confirm that no, it wasn’t from Paris; I’d actually made it myself so yes, I was sure of that and to thank her for her interest, as Mum finally decided that the walker handles were for holding and started pushing away.  Just as the other lady started lacing her fingers through the granny squares that made up my scarf…

Not for the first time I felt a little like I was in some weird sitcom as I tried to step in front of the walker with the bottom half of my body to stop Mum wandering off alone, while unwinding the scarf from my neck so I didn’t get strangled, at the same time as gently removing the lady’s fingers from the holes they had wound themselves through. There was not a purple tunic in sight.

Anyway, we managed.  We got to Mum’s room.  Mum decided she didn’t want to be there now, so we went back.  And the toast had gone.  So Mum sat in a comfy seat near the Christmas tree and I left her listening to carols.

I went to Dads and (I am rather proud to say) cooked 22 meals for him, from scratch in three hours. I did have to clean all surfaces – including the windows – before I left, but we’ll gloss over that.  (I already mentioned that on Facebook and Instagram, so sorry for the additional brag here if you follow the blog there 🙂)

So I did manage to crack on for part of the day, anyway 🙂

 

Posted in care home, Cooking, COPD, dementia, family, looking after Mum, memory, stroke, Tuesday | Tagged , , , , , , , , | Leave a comment

Musical Bingo, anyone?

Now Mum has moved to the dementia unit at the care home, visiting has become a bit more of a gamble.  There’s a lot more activities for Mum to take part in and the team have no qualms with ‘encouraging’ visitors to get involved…

That is how a few weeks ago I became heavily involved in a game of musical bingo which had just started.  About ten residents were in a loose horse shoe shape in their armchairs, with the staff member front and centre pausing and plying clips on a CD.  I sat next to Mum who clearly had no concept what was going on but seemed to be enjoying herself;  I think the same was probably true of everyone there.  I started humming to a clip and realised it was on Mums bingo card so covered it with a chip for her.  The man to her right was having similar issues so I helped him out too.  And the lady on our left…well she was having a great time stacking counters willy nilly, so I left her to it.  I got a little more involved in the singing, but was totally outdone by the gentleman we’ll call Tommy who was singing each clip…and then as much of the rest of the song as he knew with the gusto of a West End star.

This carried on through the likes of ‘White Cliffs of Dover’, Cliff Richard and The Beatles.  A couple of times Tommy went quiet and I watched him and the ladies either side to realise that they were passing a pink slipper up and down their row.  Indeed, the lady to his left was only wearing one, but hadn’t seemed to realise the one that was being passed back every so often was the one she had lost. Up and down it went between the varying vocal arrangements and the suggestions of what the song could be.  At one point Tommy was passed the slipper, looked at it in surprise like it was the first time he’d seen it, raised each foot individually to check he wasn’t missing it, decided he wasn’t, and stuffed it behind a cushion.

The whole bingo game (38 tracks!) took most of the time I had planned to visit, but I’m not sure I’ve giggled that much visiting Mum before.  I admit I did practically hide the following week when everyone was being taken to a concert with a live singer (I got trapped in one of those Mum’s first week.  It’s an acquired taste…) Sadly, I didn’t visit on Giant Snakes and Ladders Day which looked quite fun:

Side note:  I’m writing this trying to show you the humour, because there is humour.  There has to be.  While people take great pains to tell you ‘what a horrible disease dementia is’ (absolutely) and how it is ‘cruel’ and ‘robs people of who they are’ (couldn’t agree more), I’ve not yet met someone with a relative with dementia who doesn’t laugh at it.  Because if you didn’t, you’d break with the sadness and frustration of it.  So if I sound a bit flippant, trust me; it’s how it’s done.

We weren’t finished there though.  Mum decided that she needed the toilet so I took her to her bathroom, helped her, and let one of the carers know (we found out that if Mum has a poo on your watch and you don’t tell anyone it doesn’t go in her charts and they think she is constipated and medicate for that, which obviously then has it’s own issues the next day).  ‘Lovely, said the carer.  Did you get a look?  Could you give it a number?’ And showed me this:

And once again I was reminded that there are so many things I don’t know that I don’t know.  Yet. 🫣

And on my way home I wondered what will be on musical bingo when my generation are in the homes.  Micheal Jackson, Bad ? Bon Jovi, living on a Prayer? Prince, Gett Off? The Shamen, Ebeneezer Good? Oh my God, it will be so much fun!

🙂

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It was a 5 minute job

We all have those five minute jobs that grow legs occasionally, don’t we?

I had one yesterday.  All I had to do was call the local log man to request a delivery of logs.  And it turned out he had a delivery near by and could come out to me around 2pm.  And that was great.  I figured would probably only take 20 mins – 40 minutes maximum for me to get them stacked into the storage space under the house, then I could get on with All The Work Things.  Not quite five minutes, but I could make that work.

But as I ate my lunch and thought it through a bit more, I remembered Mr R had said we needed to empty the storage space under the house before we got logs delivered as it was currently full of all the things we’d dumped there over the last year, including a large chair, numerous part filled pots of paint, all our camping suff and some floorboards.  The logs were due to arrive in an hour – I had an hour to sort it.  So Percy and I rushed around the side of the house (one of us very excited that this could mean a bit of ball throwing time) and opened the under house doors.

Only I didn’t, because they were stuck shut.  I tried to use the key as a lever: nothing.  I got a knife from the house to use as a crowbar.  I bent the knife.  I got a second knife and tried to use both together:  Nothing.  I video called Mr R in London to show demonstrate the door issue and ask for suggestions, even though I then shot all suggestions down in flames (because clearly on some level this was at least partly his fault, and by this time I was hot and grumpy).  But I didn’t need Mr R’s suggestions; it turned out I just needed my lovely next door neighbour’s window cleaner who appeared like a giant bearded fairy and asked if he could help.  Obviously he just pulled on the key a tiny bit and the door just popped open (clearly, I’d done all the groundwork required).

I managed to remove / reorganise all the insides sufficiently so that when the log man arrived with the giant back of logs (around 1/4 tonne.  It wasn’t a Tesco bag for life – we’re talking a lot of logs), and we managed the get the wheely thing corrying the giant bag of logs down the drive, I had enough room to carry out my 20-40 minutes job which so far had taken and hour.  I stacked hard and fast and was very proud until I tried to close the door.  Not a chance.  Especially as the window cleaner had finished ages ago.

I think what had happened is that the doors had expanded slightly since they’s had three coats of paint added to then (rather expertly, I might add, by smaller Stepson).  I requested advice from Mr R:

(I’m not allowed to use power tools with cords unsupervised ever since I hedge trimmed through the hedge trimmer power cord.)

I found some sand paper.  I fixed a bit.

I realised the job was way bigger.

Obviously the electric sander had no instructions, so Percy and I examined it, had a think about what you might have to do and…

…well lets just say I might have missed my vocation as a power sander extraordinaire 😁

The power lead is intact.

I am intact.

I sanded nothing I didn’t mean to (mostly)

We now have cupboards that close. And open (without the need of a window cleaner).

And my five minute job only ended up taking 2.5 hours…🤷‍♀️

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Finding Brave

I think sometimes we all need a bit more brave, don’t we?

My niece struggles to find her brave sometimes, but luckily it was brought to the attention Dave the Brave – the dragon in charge of all or our brave, and he sent her a letter and some extra special brave.

It turns out that Dave is surprisingly good at conversational hypnosis too, so there was actual magic happening when Little Wisps Mum read her out the letter…

I just thought you might like to see it 🙂

This new brave was named by Little Wisp (entirely independently) as ‘Ember’, proving that even when you are just finding your brave and are eight years old, you can have many other creative skills. 😁

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